One of the hard parts about not feeling 100% is that it’s advisable to rest, to stay put. I am terrible at resting and staying put.
On a physical level, it’s just plain difficult for me to settle down in a chair for very long. I’m up, I’m down. I sit down to sew and oop! Gotta get up for some ice. I sit down to write and oop! I’m up because I really should go get the laundry out of the dryer before I get too into things. I sit down to have my breakfast and oop! I’m up because I need salt. That kind of thing.
But that’s just the micro-level stuff. It’s hard for me to stay put on the macro level, as well. After a string of days laying low, I feel so off. I want to be leaping and leapfrogging and feeling fabulous but I feel logie and grouchy and antsy. It’s important to mention, by the way, my desire to leap and frog about does not mean I have a yen to go outside and catch butterflies or hike the Appalachian Trail or swim laps all day and then link arms with my friends and dance till the sun goes down (or comes up? I don’t know, I’m exhausted just thinking about all that.) Leaping and leapfrogging and feeling fabulous to me can be as simple as getting up and feeling good, then being productive at my desk and then maybe going to lunch.
When I can’t do these things, when doing laundry is hard not just because I’m iron-deficient but because I’m mildly depressed over being iron-deficient, it’s hard to get up over the fence.
Today, I did things that helped. It always starts with little things. I made a list that was manageable. Here’s what was on the list:
And guess what? I did all of those things (plus a few more) and I feel better as I write this.
If my blog is ever of use, it’s because I can tell you what’s happening to me and then, if it’s happening to you and you identify, you won’t feel like you’re sitting by yourself. Maybe you’re not anemic, but maybe you’ve been sitting still and feeling weird about that or feeling bad about it. My suggestion is that perhaps you might like to make a short list. It worked for me today.
Just try a short list.
It’s not like I’ve been flat on my back. Well, okay. Today I was flat on my back.
My day consisted of 2.5 naps and 2.3 bowls of miso soup with udon noodles. The naps happened because I am spooky tired and can’t seem to keep my eyes open. The udon happened because my weak hemogoblins are demanding quick carbohydrates. Normally I stay away from the demon noodle, but these are desperate times. As a result of all this drowsy noodle eating, I feel sort of worse than I did when I woke up. I’ve got that sick-in-bed noodle daze thing going on, you know?
Not every day in the past week has been like this, but there have been long hours on the couch or in bed. It’s very hard for me to allow myself to spend hours this way, but what can I do?
Well, I can read. So I’ve been reading. Most notably, I read Angela’s Ashes in about three days.
If you were even dimly aware of pop culture in 1996, you know the book I’m talking about. Angela’s Ashes was everywhere, a memoir of author Frank McCourt’s boyhood in Limerick, Ireland in the 1930s and ’40s. McCourt wrote it when he was 69 after a lifetime teaching high school English in New York City. The book won the Pulitzer Prize. It won the National Book Award. Angela’s Ashes won everything there was to win. It was on the New York Times bestseller list for three years. Six million copies have been sold to date. Hollywood made it into a movie. There are a zillion translations. It’s canonical.*
As for me, I was in high school in 1996 and too busy blasting PJ Harvey records in my Honda CR-X to care much about a tale of a hardscrabble Irish boyhood, so I skipped it. And I never did get around to reading it because, you know, life and a zillion other books to read. And if I’m honest, I do get a little resistant to anything that popular. I’m not a joiner and honestly, could it really be that great?
It’s better.
Angela’s Ashes is a masterpiece. It is perfect. A perfect book. Angela’s Ashes is a work of art that became a part of me, page by page. I moaned out loud as I read, anguished to the point of pain at the crushing poverty, the death, the cruelty of circumstances endured by this family. My eyes stung as catastrophe after catastrophe befell them; my eyes sting now to think back to the characters I grew to love.
And I laughed out loud, of course, because Angela’s Ashes is funny. It’s so funny you can’t believe it. I was shaking my head at what I read, wiping tears from my eyes from the laughter (or was it the sorrow?) marveling at this man, Frank McCourt. Not only did he survive his childhood, he found the humor and joy in it, too — and then he wrote it down so well we can survive with him and spew our tea all over our pajamas because he’s so entertaining while we’re with him. (Ask me how I know about that pajama/tea thing.)
My experience reading this book is universal to the point of being uninteresting, I suppose. It’s safe to say that everyone who reads Angela’s Ashes is deeply moved. Oh, I’m sure there’s someone somewhere who tried to start an Angela’s Ashes backlash, someone who “didn’t think it was as great as everyone said it was.” We’re all entitled to an opinion, but I would have a hard time understanding how anyone could encounter that rich pageant of humanity and beauty and misery and reject it in any way. Frank McCourt made the world a gift in the form of a book. And the copy I read I checked out at the library, which means it was free.
All of that, for free. ‘Tis a great world, indeed, Mr. McCourt. Thank you.
*Read the book if you haven’t; read it again if you have.
I’ve been gone a few days on order from friends and my hemogoblins who told me to “take it easy, Fons.” Not posting for several days makes my eye twitch and my foot tap something terrible, so I’ll be back tomorrow even if I’m hunting and pecking at my keyboard.
Thanks to all for the well wishes. You’re pretty and you’re nice.
xo
Mary
A couple years ago, I wrote about how I don’t freak out if I leave out a pot of soup overnight, how I’ll just shrug and stick it in the fridge and make sure I heat it up extra hot next time. I made sure to mention that there are strict limits to this “eh, whatever” kitchen rule and to never be afraid to come over for dinner, but a lot of you still thought I was weird.
This post is way weirder. But I’m going to write it because walking home from the library, I laughed out loud to myself just thinking about it — which was also weird, of course, but fun for the guys who hang out in the park by the library who saw me laughing to myself.
The precipitous decline in my hemogoblins over the past few months has, as I’ve mentioned, led to a steep increase in my ice consumption. As a number of you have so astutely pointed out, this ice-eating is a symptom called “pica.” Pica is “a tendency or craving to eat substances other than normal food, such as clay, plaster, or ashes, occurring during childhood or pregnancy or as a symptom of disease.”
There are many things to be grateful for: Not craving a glass of ashes or plaster is at the top of my list right now.
Ah, but frozen water counts as non-normal food and as my picamarades know, when you’ve got anemia and pica is upon you, nothing tastes as good as a big cup of really good ice. And you’d better believe that there’s good ice and less-good ice. There’s bad ice (e.g., cubes too large, over-frozen, etc.) There’s acceptable ice. There’s even ideal ice. As an almost compulsive ice-eater, I have become an ice connoisseur and I would like to now review some of the ice that I have sampled lately.
Though this is silly, I assure you: I devote a good deal of time these days to ice procurement, consumption, and evaluation. It’s unsettling to me how excited I am to write these ice reviews. But here we go.
Note: Ice evaluated on a scale of 1-5 on texture, flavor, melting rate, and ease of obtaining. All locations are in the Loop or South Loop of Chicago. In the case of chain stores, the management cannot guarantee quality/consistency.
My Condo: 4.5
My ice maker is broken (oh, the irony) but I have four ice trays that are awesome if I only fill them up halfway. If I only fill them halfway, when I pull a tray out, the ice gets melty in the trays and it’s really chewy. Picking ice cubes out of the tray like that feels sort of like eating a box of chocolates.
Hilton Hotel Cafe: 3.7
I sometimes take a shortcut through the Hilton if it’s cold or rainy and the cafe near the lobby has a self-serve soda machine: total score. I’ve taken a big plastic cup over there on several occasions for the semi-crushed, fresh-tasting ice, but I can’t get cocky. The lady behind the counter gave me the stink-eye the other day.
Pret-a-Manger, Michigan and Monroe: 4.7
This big-city chain cafe has the best ice ever. It’s thin. It’s crispy. It’s crunchy. The cups are big. I try to scam two full cups of ice from the folks behind the counter when I buy a can of Diet Coke but sometimes they say they have to charge me for a large beverage if I want one. If I’m feelin’ flush, I’ll do it. (Q: Has anyone ever planned a heist of an ice machine? Call me.)
Starbucks (Any location): 3.1
Starbucks ice is okay in a pinch, but it’s too hard. And you often get big bars of ice that haven’t separated into cubes. Do you know what I mean? I hate that. My hemogoblins hate it when that happens.
That One Falafel Place on Wabash: 4.1
An upset! This is almost as good as the crushed, almost snow cone ice that you get at a Sonic. (Now there’s some great ice — alas, no Sonics in the Loop.) Anyway, I like this place’s ice better than the shwarma.
7-Eleven on my block: 4.0
The guys who work there are very sweet and rarely charge me for a refill. They may be concerned.
It’s amazing to me when there are reasons for things. Most of the time, I am tempest tossed, continually bewildered to learn that effects have/had causes. My body is a mystery to me, even now, thirty-some years into having the one I was born with. I talked to my doctor today and all the strange things that have been happening to me for the past three months suddenly made sense.
First, the strange things:
Now, a quick pop quiz, remembering that I call my “hemoglobin” my “hemogoblins”:
Q: What’s a normal hemogoblin level in an adult female?
A: 14.
Q: How low does an adult female’s hemogoblin level need to fall before she needs a blood transfusion?
A: 7.
Q: What’s Mary’s hemogoblin level right now?
A: 7.5.
This explains everything. I’m so tired. I haven’t been posting as much as I usually do because I’m just so tired. I try to make time for everything but it’s like working through mud, sometimes. There’s so much to do, and I was consciously and subconsciously doing the Have To’s and not all of the Very Much Want/Need To’s.
The reason I’m not getting a blood transfusion right now is that my insurance company won’t approve it unless I hit 7. The plan, therefore, is to get an iron transfusion approved and do that first. Me, I’d rather have the blood. Let’s cut to the chase, gentlemen. But it would probably be unwise to twiddle my pale, anemic thumbs until I dip lower and then do my best vampire impression, so I’ll take the iron infusion when they give the go-ahead. That should help. It’ll also cost $750 a pop, even with the insurance, and it usually takes two. Super.
Can I tell you something that is very honest?
I had a moment today after I got the Anemia Update and I wished I was at 5. Because if I was at 5, maybe I could be admitted for a night. Maybe even two. And I could just rest. No one would question it. Not even me.
That’s messed up, I guess. But sometimes, it’s like… It’s like you just need to get off the bus and have someone come in and take your vital signs and help you to the bathroom and bring you gingerale in a little cup with a foil lid.
Maybe you know what I mean.