PaperGirl Blog by Mary Fons

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Survey About Quilting / Feminism for My Grad School Paper

posted in: Day In The Life 11

Crazy Quilt, by Tamar Horton Harris North, 1877. Image: Newark Museum, via Wikipedia.

 

Hi, gang.

I posted about this on my Facebook page this morning and I already have close to 1,000 responses. If you haven’t already, I would deeply appreciate you sparing under 20 seconds (unless you answer the optional third question) to take this 100 percent anonymous survey about quilting and feminism.

This is anonymous. I don’t require you to enter your name, email address, or anything of the kind in order to contribute your answer/thoughts. I’m writing a paper for grad school that is interested in this question — I’m not out to draw conclusions right now. It’s just a study. In case you haven’t clicked over already, the questions on the survey are:

  1. Do you consider yourself a quilter? (Y/N/Maybe)
  2. Do you consider yourself a feminist? (Y/N/Maybe)
  3. Is there anything you’d like to say?

And that third question is optional.

Hey, man: I need to graduate. And before I graduate, I need to write a final paper. Before my final paper, I need to write my midterm essay. This data is going to go a long way toward allll those things. So share the survey link with your friends and family and guild members — even your cat, if she quilts! I don’t discriminate between people and cats! I’m a catiminist!

Seriously, thanks to all who take the time.

xo,
L’il Miss Study Hall

Beware Of Almonds, GI Sisters and Brothers (Part II)

posted in: Confessions, Sicky, Story 32
I love, love, love macarons. And almond paste. But this is my nightmare. Image: Wikipedia.

 

My post from a few days ago was a real cliffhanger — and then I kept you cliff-hanging. I’m sorry about that. There are a lot of spinning plates right now and sometimes I have to set a plate on the shelf for a second and rest my … what, fingertips? My plate-spinning stick? How does plate-spinning really work? Any actual plate-spinners out there, leave your remarks in the comments.

Also, this post has been incredibly hard to write for reasons that will soon be obvious. I’ve been dragging my feet.

Where was I, before time was up? Oh, right: Raw almonds for breakfast. If you haven’t read Part I, do that and then brace yourself for some extremely unpleasant (and personal) anatomic details.

The colon, also known as the large intestine, is a kind of shop vac: It sucks up the fluid from what you eat and drink so that the body can make solid waste. Then it holds onto … all that for a period of time and then, you know, you get rid of it. My shop vac was removed 10 years ago because it was, in the words of the surgeon who really messed up my surgery, “completely gone on the left side.”

What this means is that I don’t produce solid waste and never will again. I can eat things that are better for my condition and things that are way worse for it, but to go through a list of good vs. bad foods is a pointless exercise in many respects; what works only sometimes works and what doesn’t work for awhile suddenly isn’t so bad. But almonds are bad, full-stop. Which brings us to the second dignity-sucking feature of this tale and honestly, part of the reason I delayed in getting back to it. Let’s talk about fissures.

A fissure is a tiny, usually thread-thin crack between one thing and another. A fissure is relatively (very) narrow and not jagged; it’s not a rip or a tear, exactly. You can see fissures in rocks. Hairline fractures in bones would be a good visual. Fissures can happen in body tissue, too, and when they happen, it is bad. I had a fissure at the tail (!) end of my digestive tract and that is as much as I’ll tell you in terms of anatomy because we all know what I’m talking about.

My fissure arrived in late 2013 and was diagnosed as “acute” and “chronic”. Because I no longer have my shop vac, remember, I go to the bathroom a lot during the day and through night. Way more than most people, even with my J-pouch surgeries. If you have a fissure where I had one, the last, last, last thing on the planet you want to do is go to the bathroom. And at that time, because I didn’t know I was allergic (or had a reaction to) almonds, I was typically going 8-9 times a day and as many times through the night.

The pain of my condition bent my mind. It eviscerated my will, my fortitude, my spiritual condition. I squalled like a newborn. I babbled incoherently to no one as I pep-talked myself into going back to the guillotine, aka bathroom, over and over. The cramps were terrible. I had to go. And when I went, only an acidic trickle would come and I clawed my thighs until they were scraped and raw, too. It was a dark, dark time. And I told very few people about it. I didn’t tell you much about it, did I? Why?

It was so embarrassing. And the doctors said the fissure would likely settle down, though it will probably always be there, I understand?) A surgery that can be done as a last resort, but it’s not always successful; besides, the thought of more surgery in my GI tract — anywhere, anywhere in my GI tract — sent me into further paroxysms of despair, so I did not allow myself to see surgery as an option. Also, I am tough, Midwestern, stoic. Also, I tend to isolate. I’m a writer, by nature an introvert. And you bet I was depressed, for obvious reasons. And when you’re depressed, you just … You know. Nothing.

Look, the whole reason I’m telling this story is because I don’t recall anyone ever asking me what I was eating. And I think that would’ve been good. Raw almonds can cause diarrhea. And when you’re going to the bathroom as much as I was, the fibrous skins are really, really hard on a bottom. Why didn’t anyone help me put this together?

Before anyone gets arch please remember what I have written many times over the 12+ years of this blog: My doctors, surgeons, and nurses saved my life on several occasions and, if I can find new ones, medical professionals will help me live a long time. I’m not hating on doctors. I’m just bewildered, as usual, by the chaos of it all.

Good grief, let’s wrap this up, shall we? I rarely give advice, but here’s some I feel good about:

If you know someone with a J-pouch; IBD; Crohn’s; Ulcerative Colitis; diverticulitis, or any serious affliction related to the intestines, ask us about their diet. But — and this is so important — don’t tell us what to eat or suggest we do this or that. It’s so hard to be told, even by well-meaning people, that you’re doing eating wrong. (For example: The German and the Russian both pushed yogurt on me constantly and made me feel like a failure because I didn’t consume quarts of it daily.)

Telling a person, “You should eat this” or “[X] is a magic food for the gut” is different from just asking what’s in our diet. Asking us what we eat from day to day gives us an opportunity to think about it. Maybe there is something we could do differently. I mean, it’s crazy: If I have even a touch of almond milk or eat something like I did the other day that has raw almonds in it, it’s awful. But I didn’t know for a long time.

There you have it, my suffering GI Janes and Joes. Here’s the question:

“Shh … Shh. It’s gonna be okay. Deep breath. Why don’t you tell me what you’re eating, honey. Let’s start there.”

The Backpage

posted in: Confessions 6
“Promotional postcard of Jean, the Vitagraph Dog”, c. 1911. Courtesy Wikipedia.

 

This beautiful pup is standing in for Mary at the moment. She isn’t able to post at the moment, but she’ll be back.

Yes, she’ll be back. Like the cat … who came back the very next day. Like Jack, who learned how to “get back” in the popular song. Like an Indiana Jones-type person who, ahead of his ragtag bunch of misfit archaeologists, discovers quicksand and turns to the team with his arm outstretched to say, “Get back! Get … back.”

That’s like Mary right now. She’s every cat, every Jack, every scruffy/hot archeoloigst/college professor faced with quicksand. She’ll be back. And when she comes back, she’ll finish her story about almonds and all the other stories she has to tell. There are so many, you see. The time is the problem.

Yo, clock: Get back.

Beware Of Almonds, GI Sisters and Brothers (Part I)

posted in: Sicky 29
Welcome to hell. Image: Wikipedia.

 

Something just happened and it is bad.

I accidentally ate a food that has almonds in it and now I wait for suffering. That’s not me being dramatic. In about two hours, it’s curtains for me.

First will come the twinges of pressure, followed soon by the first cramp. Then the gurgle. Then the clutch. The clench. And then it’ll begin: I’ll be in and out of the bathroom many times. How many times? Many. It’s likely I’ll cry at some point because when you’re in and out of the bathroom as many times as I’m about to go, there are breakdowns. First come the soft tissue breakdowns, if you catch my drift? Then, because of that, emotional breakdowns are likely. I’m in for pain tonight.

Rather than suffer in silence, I decided this was a terrific opportunity (woo!) to tell you about my problem with almonds so that you can benefit from it or relay it to anyone you know who suffers from GI distress of any kind; most specifically, someone like me, who possesses a J-Pouch. Warn them that for a dear friend of yours (that’s me) almonds are a hellscape of torture and agony and, if they are like me, these nuts should be avoided at all costs.

[If you aren’t sure if someone you know has a J-Pouch, you may not know them well enough to ask; if you’re kind and the two of you grow closer, however, they will eventually tell you about it. If you have a J-Pouch, you definitely know. And for all those who don’t have their very own J-Pouch and don’t know anyone with one, please keep reading, as this post is for you, too. Life is long and you may very well use this information later.]

Now, then.

I’ve heard that folks with Diverticulitis can’t eat popcorn or things with seeds, e.g., strawberries, “everything” bagels, etc. The trouble is that super-small stuff can get caught along the way and I understand that when this happens it can be blindingly painful, often requiring a hospital visit.

But for me, popcorn is great. I have it (with a nice pinot noir) for dinner more often than I’d care to admit. Some of my other other brothers and sisters in the intestinal failure business can’t eat gluten — ever. I’m halfway in this camp and when I pass up gluten at a restaurant, I like to laugh and say, “Yeah, but I was gluten-free before it was cool.” In my case, too much gluten causes inflammation and for a girl whose large intestine immolated itself, keeping inflammation to a minimum is the way to go. But unlike people with an intense gluten allergy, I can have spaghetti sometimes and no one dies.

Ah, but almonds.

Let me take you back to 2013. You’d think the worst chapter of my health odyssey was Ground Zero, ten years ago, at Mayo Clinic, when they removed most of my guts and screwed up the surgery. You’re half-right but half-wrong, too, because five years later, every IR drain, every PICC line, every setback and ostomy separation at Ground Zero went head-to-head with the chronic fissure that showed up and utterly ruined me for at least a year. The fissure ruined me 24 hours a day, 7 days a week, endlessly, always, constantly, during that time. The fissure became the axis around which my entire life revolved. The fissure became a piece of my consciousness. The fissure was my slave-driver, and I use that term with an understanding of its revolting definition.

And in all the hospitalizations (I lost count); the sick days; the awful ways I tried to cope with the problem (you’ll have to wait for my tell-all memoir for that) — in all that time, no doctor, nurse, or well-meaning pal ever, ever asked me: “What are you eating?”

If they had asked me, I would’ve said, weakly, traumatized: “I don’t know .. Not much of anything because I’m so scared to pass it … In the evening, I’m probably drinking too much Chardonnay because, ha, ha, it isn’t solid … Um, for breakfast … Oh, I eat almonds and Nutella in the morning, usually.”

That’s right. My breakfast for many months — because it made me happy, it was easy to prepare, went great with my Earl Gray tea, and was gluten-free, which was supposed to be a good choice for me — was a handful of almonds in a pretty teacup with a dollop of Nutella on the top. Who wouldn’t want to eat that, right? And I wasn’t supposed to eat toast, after all. Gluten bad. So Nutella and almonds are what I ate. Day after day.

And day after day — ah.

Sorry. It’s time to go. I’ll pick this back up tomorrow, and I won’t make you wait. But I can’t wait. Because it’s starting.

xo
Mary

 

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