21 Apr 2015

El Hospitale.

by | posted in: Day In The Life, Sicky | 1
Good Samaritan, by Gabriel Nicolet, 1914-1915
Good Samaritan, by Gabriel Nicolet, 1914-1915

I spent the majority of the day in the hospital yesterday, dagnabbit.

Sometimes it seems that I get sick or have something go wrong and when I recover, it’s time to set my stopwatch and wait for the 00:00 to hit and then it’s back to the nurses and doctors. My 00:00 came the other night and yesterday, I could wait no longer to take my watch to the ER.

Starting last week taping TV, I felt this a strange, new pain. (It’s always exciting to experience a symptom for the first time! It’s like making a new friend.) There was intense pain and a strange gripping, clenching, internal dripping (??) feeling around my old ostomy site. I’ve got a fabulous scar to the right of my bellybutton and all around it, tenderness and a disturbing hardness had arrived. And did I detect streaks? Under the skin? Oh, dear. Oh, boy. It was worse when I bent over to pick up my house keys, which happens all the time for some reason.

My new friend Elle (a quilter, no surprise) told me when I got to DC that if I ever needed medical care, to call her immediately. “I know from ER trips,” she said, having taken various members of her family on a regular basis. “I’ll be your advocate. I know about that, too.”

I really, really hate calling in favors, but I did. Elle and baby Miles took me to Sibley and I’m happy to say I received excellent care. Surgeons poked at me, internal medicine doctors prodded me, CT scans were ordered, and pain medicine was blessedly dispensed. I barfed a lot, too. We were there for eight hours and Miles was an angel. He also was useful: when Elle would go out of my room to ask for something, the staff was like, “Oh!! Adorable baby!! Yes, how can we help you? Adorable baby!!”

Results were inconclusive. The surgeon thinks it’s sutures working themselves out, maybe adhesions shifting around. But I got bonus diagnoses: I have a small gallstone and a 2” ovarian cyst on my right side. Wow! And I just came in for what I thought was a piece of my intestine ready to quit on me. I told my surgeon about my lipoma, too. He said it was no big deal and laughed when I told him how I found it. 

All you have to do is get out of bed in the morning. Things will happen to you. Experiences will arrive. What will happen today? Time to wake up.

26 Jan 2015

3 Procedures + 1 DJ

by | posted in: Sicky | 3
"Twilight near Hetlingen in Germany." Photo: Huhu Huet, 2009.
“Twilight near Hetlingen in Germany.” Photo: Huhu Huet, 2009.

The title of this post is a play on the title of a song I love by the Beastie Boys: Three MCs and One DJ. The Beastie Boys were and are the best band in the world, so that settles that.

I had an upper endoscopy, a pouchoscopy, and a CT scan different from the CT scan I had yesterday because the one today involved contrast. When you have a CT scan with contrast, it means that when you’re in the big donut, you hear a voice come over the PA system that says, “Okay, Miss Fons, we’re going to start the contrast,” and then you feel the strangest, wildest warm liquid spread through your body starting at the point where you have your IV placed. Contrast fluid is getting pumped into your veins and you feel it! and it makes your belly warm, and it makes your arms and legs warm and, let’s be honest, it makes all your parts, hm, very warm and it’s not unpleasant, but this is not going to be offered as a spa treatment anytime soon.

So those were the three procedures I made reference to in the title; the DJ was just the muzak over the speakers as they wheeled me on the gurney to and fro and to all over these Northwestern hallways.

Did I mention yesterday they did a freaking spinal tap? And that I got three freaking sacs of human being blood? I have no recollection of writing yesterday’s post but I can’t bear to go back and look to see if a) I really did and b) if it needs revising/overhauling — I’m sure it does. No use. Typing through pain medicine is like typing Morse code through Jell-o, through pain medicine. It’s very anxiety-causing. Each PaperGirl post is a mini-newspaper, you know, except that every post is a first draft. The audacity.

The doctors don’t know what’s going on. Tomorrow, a pelvic ultrasound. They have to figure out where the Sam Hill all this hemoglobin is going. Fibroids? Something more sinister, still? My sister Rebecca and I have decided to call my blood cells my “hemogoblins” and we have to corral them all back to where they need to be.

Dull as my brain might be at the moment, the moments themselves, they live in the Land of The Neverdull.

Also, you must remember this. 

29 Dec 2013

Tops, Ramen.

by | posted in: Day In The Life, Food, Sicky, Story, Tips | 7
Some things, they cannot be explained.
Some things, they cannot be explained.

When I had the flu the other day, I had zero appetite. The mere mention of eating was enough to make me holler in anguish from my sickbed. Except that one thing actually did sound good: chicken-flavored Maruchan Top Ramen.

Look, I don’t make the rules. I have no idea why a block of sodium starch is a curative for me, but when I am at death’s door, convenience store ramen noodles save the day. I can say with conviction because when I was gravely ill with ulcerative colitis and the first of the surgical complications years ago, Top Ramen kept me alive. Fine, okay, the horse pill antibiotics and the doctors did their part, but if it weren’t for the inexplicable deliciousness of cheap ramen, I would have had a feeding tube earlier than I did.

I would sit on my mother’s couch, an increasingly wispy wisp of a thing, dazed with morphine and woozy from the blood thinner delivered in my hindquarters twice a day via injection. I would watch something on television (I think?) and I would try and get up to walk because that was supposed to be important, but mostly I just waited till Mom or my husband at the time would come to flush my wound drains. I’ve described a fraction of it. It was horrid.

“Honey, what do you think you can eat?” my mother would ask, coming into the living room. She had new lines on her face.

We tried ice cream. We tried cheese. We tried pudding. We tried crackers. Chips. Soups. Cookies. I would take one bite and push it away and I missed my appetite. So many times as a twenty-something woman I had dieted for periods of time, fervently wishing I could have no appetite — it sounded so simple! — so that I could slim down my hips for the summer or whatever crucial event I felt couldn’t be fun or successful unless I was skinny. But when my appetite actually vanished, and for such a long time, I mourned it. Nourishment is not just about calories; it’s about vitality. I was not vital. There was no bloom in my cheek.

Then one day, I said, “Mom, I think I want some ramen noodles.”

I ate them. The whole block. They were salty and easy to swallow. They were fun to eat, those looooong curly noodles and the bullion broth was free of bits, chunks, vegetal matter of any kind. It is a benign substance, Top Ramen. There is nothing to avoid; there is surrender to simplicity. It is the anti-foodie food. The nutritional value is dubious at best, but dammit if there aren’t 400-something calories per block and at that point, that was 400 more calories than I was getting.

Every day, I ate ramen for breakfast, my sole “meal” of the day. I even looked forward to the moment when Mama would come in with my tray. It makes me cry to think of her now in her red robe, coming in with a chipper smile and the wooden tray with the big bowl. She always had a cloth napkin for me and a dinner fork. She’d place the tray on the big trunk we used for a coffee table and say, “Bon appetite, sweetie,” and I would say “Thanks, Mama,” and start to eat, slowly, bringing a forkful of noodles all the way up, high above my head. I’d tip my head back and open my mouth and the day would begin that way, looking up at the ceiling, at nothing but the moment and the noodle at hand. At that dark time, the moment was the wisest place to gaze.

My regards to Mr. Maruchan.