Pin for WWII Victory Girls, who were the real Rosie The Riveters, I’ve learned. It’s not that I have a huge thing for the WWII ladies, but the images are just so great.
Good gravy that was awful!
The server. It had problems. There had to be a migration. The migration, it had problems. I was without you. Lost. Lost at sea. Lost at sea with no peanut butter. Lost at sea with no peanut butter, no coffee.
It was horrible! And over my birthday, too! What a rip-off!
Well, anyhow, PaperGirl and the site are both back up, obviously, and I apologize for any inconvencience. If not being able to access my blog rates anywhere near an inconvenience for even a handful of people, why, I’ve made it in this world.
Tomorrow, I can begin making the changes to the website I’ve long needed to make (turns out the server problem had to be handled first, bleh) and a fresh paper — PaperGirl, that is. What will we discover, friend? I’m considering observations on anything from Door County, Wisconsin, to turning [REDACTED] years old yesterday, or perhaps I’ll offer Reasons To Adore Yuri, or explain the kitten puppet I bought and named Belli. I promise no politics, no people-bashing, and no harsh language
Woman on subway, NYC 1973. Photo: Erik Calonius, US National Archives.
My Big Apple bedazzlement continues.
In 2013, the Census Bureau reported 8,405,837 million people living in New York City. If nothing about that number has changed except that me and Yuri moved here, it’s now 8,405,839. If you count my sock monkey in the number, which you should, we can get to a nicer, roundish number of 8,405,840. I’m confident Yuri, Pendennis, and moi are not the only changes to the New York City population since last year, but this is why its funny.
All of these people. There’s one of everything.
I play a little game when I’m out and about. When I see someone totally one-of-a-kind, or outlandish, or remarkable in any way (and everyone is remarkable in some way) I note their characteristics and then try to imagine imagining them. Like:
“Could there be on this earth, at this moment, a person who is a nun, around fifty years old with pink socks, a guitar, and a suitcase with a Grateful Dead sticker on it? Could that person possibly exist in this wide, wide world?”
Then I answer myself that yes, there could plausibly be such a person because in that moment when I’m asking myself, that means I am looking at a person who matches that exact description. The nun was standing in front of Penn Station the other day, waiting for a bus, I assume. Then I play some more.
“Does a person exist who has a spiderweb tattooed on his face and wears corrective shoes?”
Yes, this person lives on my block. Yuri and I call him “Spiderman” and he is frightening to behold. He is acutely homeless.
“Could there be a 4’5 Asian-American girl with a panda backpack and a tattoo of a Pac Man ghost that covers her entire leg, who is screaming at her boyfriend that she wanted peanut butter froyo, not caramel froyo, dammit Reggie????”
Yes, that argument happened about an hour ago out on St. Mark’s Place.
“Is there a male model whose girlfriend is also a model, and are they both wearing large hats and are they both wearing all denim, and are they both Serbian?”
Yep, and yep. Just another piece of the crowd on any given day.
And consider what you’re wearing. Right now, look at your outfit. Someone in New York has that exact thing on, I’m telling you. I can’t say I’ve seen them in it because of course, I can’t see you in it. But someone has it on. They might even share your name.
There’s only one you, but New York gives that concept a run for its money.
The mere mention of overalls on women in yesterday’s post inspired comment from both sides of the pant leg. I had no idea this would be so polarizing an issue!
The issue: Can a grown woman wear denim overalls and be taken seriously?
We could phrase the question many different ways. I initially conceived the issue to be, “Can a grown woman look attractive in denim overalls?” but that’s easy: Of course she can. A woman in love can look stunning in a paper sack.* A happy, healthy pregnant woman in denim overalls can look glowy and radiant, too. And if you’re someone with a thing for it, you’ll find any female in overalls (that original onesie) to be straight up hot. To each his own sartorial kink.
We could also ask, “Is there a grown woman on the planet who feels attractive in denim overalls?” but this shows my personal bias. When I have worn overalls, I have felt about as attractive as a caterpillar’s ass. This is due to the realities of my body shape. I have an ample bust and a derrier to match but I do possess a waist — for this, I thank Zeus every day. What overalls do to me is cruel. They eviscerate any hint of a waist. I become a stovepipe. A meaty, Viking, insty-stovepipe who looks like she ought to be butchering a moose with one hand while folding lard into biscuit dough with the other, all while sweating something smelly, like…goat’s milk. None of what I’ve just described makes sense. But neither do overalls on women in urban places in 21st century America! They’re confusing! They don’t understand their reference point! There’s absolutely nothing that works, here!
Are you working? In dirt? No!
Do you have breasts? Yes! You do! A square panel that rests mid-boob is uncomfortable and aesthetically problematic!
I have worn high heels that were impractical and painful but man, did my legs look fabulous because the shoe’s shape elongated my leg. I have donned chandelier earrings from time to time because dammit, I look like Cleopatra in them. Fashion is frequently impractical and silly, but in the case of almost anything other than denim overalls, there are reasons we suffer. Lines are lengthened. Curves are accentuated. The female shape is celebrated or made more mysterious. I’d like to challenge any female on earth — yes, every last one of you — to make denim overalls look mysterious.
[pause]
Mm-hm! Didn’t think so.
Every few years, Fashion declares that overalls (“coveralls” if you hail from certain farming communities in the Midwest where such garments make perfect sense because that’s who they were designed for) are “back.” Pictured above, overalls currently on offer from company that I adore. Reformation makes clothes out of materials considered “deadstock” by other fashion companies: when clothing manufacturers and designers order way too much fabric (this happens all the time) Reformation will use that material for their designs rather than have more made/shipped, etc. It’s a green strategy and the clothes are so great.**
But Reformation. Come on. That model is so pretty. She is so thin. And those overalls are made of nifty denim, possibly taken from some high fashion house like Isabel Marant or Band of Outsiders. You all have done your best! But… I mean… The crotch. It’s so squinchy. And this young woman, she has such tiny boobies, but they are still managing to slowly seep out the sides of her little denim overall’s…frontispiece. I reject your stylist’s choice of shoes here, but could I do any better than that plasticky clog? What is better? Sneakers? A strappy sandal? No! Nothing works. Nothing works because the overalls are all wrong.
I open it to you, reader. Defend your position. Because I’m over(all) it.
Get it? “Over” it? “Over(all) it”? #stoptyping
*I love to think about a woman so in love, she forgets to get dressed when she leaves her lover’s house in the morning. The baker sees her, gasps, and hands her a number of paper sacks to put on. All day, everyone wonders where she got her outfit, if she’s lost weight, what’s new with her, etc.
**I’m wearing a polka-dot Reformation skirt as I write this. I feel very attractive in it!
Free label, letters by me. Oh, to have a full-time graphic designer on staff. Or a staff!
I saw a woman wearing denim overalls today.
Though I would like to write about how every few years the public must endure Fashion’s attempts to make denim overalls cool (oh, how they try and fail!) and how this is just silly and I can’t believe we haven’t learned to ignore Fashion on this, I think that ought to wait till tomorrow. To go straight from talk of ambulances and surgeries to ill-fitting overalls is not nice. It’s like going from a popsicle to a steak. Jarring. Rude, in some cultures.
And so as I went about my day today, I tried to think of a good bridge. “I could write about what I’ve learned since getting sick,” I thought, and mentally wandered down that road. But on the way I came upon all the things that I feel more confused about, and things that I observed that didn’t necessarily teach me anything so much as simply surprised me.
So tonight, a few lists; tomorrow, overalls.
My Oprah Winfrey, “What I Know For Sure” List
– The saying, “What doesn’t kill you makes you stronger” is bizarre and largely untrue. More often, what doesn’t kill you leaves you weakened, compromised.
– You can get used to anything.
– There is no time. You must do it now.
– Being in a hospital blows. Stay out if you can, but if you must go in, pack a bag. Take your phone charger, your sock monkey, your journal. Take your glasses (if you wear them), your laptop (if you use one) and anything else you would want if you have to be there for long. As bad as you feel, try, try, try to pack a bag from home to take with you. It will bring you great comfort when you wake up.
– Visiting people when they’re in the hospital is one of the kindest, nicest, most lovely things you can do for a person. I remember every last person who came to see me. Thank you. It meant everything, every time, bless your hearts forever and ever. (Rebecca, if you’re reading this, I’m looking at you right now especially. You too, Bilal.)
Curiosities – I’ve seen myself from the inside out: I have handled my own intestines. I am kind of a badass.
– Very few people in the Eastern hemisphere get UC or Crohn’s. These are maladies of the industrialized West. One day we will know why and keep people from getting sick like this.
– Losing my hair really sucked. It came out in clumps in the shower. That was one of the worst times in terms of feeling attractive (or not.) The stoma was rough; in some ways, losing my hair was harder. A female thing?
Disappointments – In a hospital in Tucson, AZ, in ’09 or ’10 (ER trip while visiting then-husband) I looked at my frail, perforated body and all the medicine bags hanging around my head and thought, “I will never, ever hate my body again or tell myself I should lose five pounds when I don’t need to.” But I still do that.
– You can’t go back. You can never be ten years old again, happy, healthy, running through the yard in bare feet.
As the well-wishes and words of kindness came in last night/today regarding yesterday’s post, I felt subdued and grateful. I also became concerned that the sharing of my UC story thus far was potentially taking up too much air time in people’s heads, thoughts, prayers, etc. I shared the first half of the timeline with a desire to inform, possibly assist, and maybe even entertain (seriously, you can’t write this stuff.) But when the compassion came at me from all sides I suddenly felt guilty that I had directed all of this energy at myself when really, we’ve all got botched j-pouch surgeries. We’ve all got a health crisis.
We are all temporarily abled. That’s not just a politically correct catchphrase: it is one of the truest things I know. Our bodies are systems; systems fail. We are organic matter; organic matter gets infected, infested, and eventually rots away. There’s nothing to be done about it and to preface it all by saying, “Sorry to be morbid, but the funny thing about bodies is…” is to keep the yardstick in place that distances us from the reality of our rather absurd situation. It is my fondest wish that every person reading this is full of vim and vigor from their first day to their last, but it’s more likely that most of us will deal with significant health issues somewhere along the trek. Sooner, later, or now.
So hang my tale: we all need compassion. By virtue of being human, we all need loving kindness. It’s hard down here. And that’s when we’re healthy and well! Beyond that, many of us have diseases and afflictions that do not call for surgery and never will. There are those among us who are quite sick indeed but look perfectly fine. Those people need emails of encouragement, too. They need blog comments. And so it was that I felt I had gotten too much of the universe’s healing energy yesterday and today. I will send some along to the next fellow with your regards; maybe it will come back to you, as you also need it. Sooner, later, now.
With that, let’s dive down into the second half of what happened so far in my life, vis a vis being sick. When I returned to Chicago in ’09, things took a turn from awful to downright horrid.
Summer ’09 – My then-husband leaves for a year to train for the Army Reserves. A decision we made together proves disastrous. He was away, my entire world/existence was changing daily. A gulf formed that would never again be brooked.
August ’09 – I am declared well enough for the “takedown” surgery at Northwestern. The ileostomy (stoma) I had is poked back inside my belly and reconnected to the internal j-pouch. In theory, I should be able to continue my life now, albeit with a “new normal.”
September ’09 – My health rapidly deteriorates following the takedown. Turns out the leak has not healed. Waste is leaking into my abdomen from the pouch. I am hospitalized — can’t remember how many times — over the next few months. (Silver lining: I begin to make quilts for sanity preservation.)
October ’09 – “Bio-glue” is squirted into my j-pouch in attempts to “plug up” the leak. Bio-glue is what they use to glue heart muscles back together after surgery, apparently? While the glue does its thing, I am told “No food allowed.” A PICC line (my third; a mega-IV that is inserted via ultrasound into your arm and travels through a major artery to dump medicine/food directly into your vena cava) is placed and I am put on total parenteral nutrition (a.k.a., TPN, a.k.a., “feeding tube”.) Twice a day, I hook up a gallon bag of white fluid into a port in my arm and sit still while it is pumped in. I have several IR drains, as well. I am a ghost among men.
November ’09 – TPN and bio glue deemed a failure. Pouch needs more time to heal after all. I will be re-diverted. (Translation: I will get another stoma.) Surgery at Northwestern. This time, I get an epidural. A psychiatrist visits me in the hospital post-surgery and recommends I go on an antidepressant. I take her up on that.
December ’09-’11 – Life continues apace. My marriage falls apart. I continue to work as a freelancer, building Quilty and doing work in the theater in Chicago to take my mind off my health issues and my broken relationship. Bag leaks in bed, painful rashes, etc., are par for the course with the second stoma as with the first but it’s a known quantity, at least. I begin to practice yoga with obsessive drive: I make deals with the universe that if I get healthy enough before the second takedown a year from now, I will make it.
June ’11 – Second takedown. Northwestern. Epidural. Things go well.
Fall ’12 – After a shaky but decent year, things begin to crack. I have a fissure. I also have a fistula. (I leave those things to you to look up. Do not image search.) Various methods are deployed to deal with these issues. I work harder than I should, afraid at any moment of hospitalization. There are several, usually related to the fistula or flora issues in my ruined guts. I make a series of self-destructive choices. I am wildly productive.
Fall ’13 – The fissure has come home to roost. I am crippled with pain. An ambulance comes to my condo to get me on the worst of the nights; they break my front door. I get into a pattern where I know when the fissure is about to do its worst; I frequently take the bus up Michigan Ave. to the ER. Hospitalizations. Pain medicine. Lying to everyone about how bad it is. Describing the pain to someone, I say it’s “like having a gunshot wound that you sh-t battery acid out of approximately twenty times a day.” (I stand by this description.)
Then, up to now – Good days, bad days. I got a pain doctor who recommended an internal pain pump. This is a morphine drip, essentially, placed into my abdomen, which I then pump when I feel the agony coming on. I decline, not yet ready for another apparatus. Probiotics. Lost days. Days packed so full, no one will notice the ones when I’m useless.
Remember, this is the timeline of the health crisis. One only needs to look back at PaperGirl, or the issues of Quilty magazine or the shows, or the other shows, to see that life has been much more than just this list of woe and setbacks. Joy and wonder, and gifts abound in my life. Success and learning and all kinds of wonderful life has been lived since 2008. And there have been all sorts of failures and good, old-fashioned crappy (hey!) days that had nothing to do with any of the body stuff, too — that’s the real kicker. Good, bad, or otherwise, though, this timeline is a specter. My experience and condition don’t define me, except that both kind of do.
I am going to make cookies for Yuri now. Good grief! [Correction: Cookys! I meant cookys!!]
